Declan Noone is the President of the European Haemophilia Consortium (EHC). Declan worked with the Irish Haemophilia Society (IHS) for 8 years as Data and Public Policy Specialist, where his main responsibilities involved membership of the national tender board for the purchase of products for the treatment of hemophilia and other related conditions. 

He also worked in the area of hepatitis C and access to treatments. Declan has also worked with the EHC as Project Consultant on the PARTNERS Programme as well as other projects relating to hemophilia.  

He has previously sat on the World Hemophilia Federation (WFH) Board of Directors and was a member of the Educational Materials Committee, Data and Demographics Committee and Safety and Supply Committee. He was also chair of the EHC Data and Economics Committee. He has co-authored papers on the quality of life in people with hemophilia, access to hemophilia care in Europe and the WFH and EHC Monographs. Declan has a degree and master’s in Mechanical Engineering, and further achieved his MSc. in Health Economics in 2018.