Collecting Evidence in Real-Time: Advocate Experiences
Wednesday 30 November 2022
Event overview
Hosts:
Speakers:
During the webinar, we’ll hear from two advocates who will each share their experiences with gathering evidence and collecting data to support them in highlighting a potential need for improvements in care:
- Minerva Cruz, Federacion de Hemofilia de la República Mexicana
- Adam Sumera, Polish Hemophilia Society
Minerva and Adam will share their experiences in gathering data and what to potentially do in the absence of evidence. Both presentations will be followed by a Q&A discussion with our guest speakers and audience members.
Agenda overview:
| EST | CET | Agenda item |
|---|---|---|
|
11:00 – 11:05am
|
17:00 – 17:05pm
|
Event opening Jessica Klass |
|
11:05 – 11:20am
|
17:05 – 17:20pm
|
Minerva Cruz Federacion de Hemofilia de la República Mexicana |
|
11:20 – 11:35am
|
17:20 – 17:35pm
|
Adam Sumera Polish Hemophilia Society |
|
11:35 – 11:55am
|
17:35 – 17:55pm
|
Discussion Minerva Cruz, Adam Sumera |
|
11:55 – 12:00pm
|
17:55 – 18:00pm
|
Event close Arnd Schumann |
|
12:00pm – 12:30pm
|
18:00 – 18:30pm
|
Optional networking |